We are here


  • 50 days since her last day of school
  • 1 surgery
  • 1 ER visit
  • 9 days of fever
  • countless office visits
  • too many calls to the nurses
  • 3 cultures
  • 2 specimens dropped off
  • 0 answers
  • 1 Aunt who produces giggles and grins
  • 2 parents clinging, pleading, searching
  • More prayers offered by friends and family members than I can count
  • 1 God who controls it all and knows the beginning and the end

Psalm 73:26  My flesh and my heart fail;
But God is the strength of my heart and my portion forever.

 

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Surrendered to Sweet Rest

Sweet rest. Please Lord, keep your hand on this little girl. #thismamaspleading #surrender

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Kayla’s Christmas Acrostic


I printed off some really cool worksheets for Kayla to work on over the Christmas break.  She was so excited for them I had to let her start on a few yesterday.  I found this one and others at www.havefunteaching.com.  They have categories of worksheets that are free to download.

I was taken with how much fun Kayla had writing this acrostic.  Her little seven year old self comes out with a little flair and a little faith.  Enjoy!

 

It says:

Christ is born with holiday cheer.

Holiday cheer is much to hear.

Resting with snow falling down outside.

In the very bright sky is Saint Nicholas saying Hey!

Stockings are hung by the chimney with care.

T’was the night before Christmas, He was almost there.

Merry CHristmas! Merry Christmas! It is morning now.

A very nice night I had sleeping all night.

So God saved us all and then died on the cross.

Jesus is nice and loves us all.

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Chris bought this beautiful fresh wreath for us to enjoy this Christmas season. I love it!


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Fall 2012 – Love, Mercy, & Coffee

(Chris, Bekah, FirePapa, Nana, Kayla, Valerie in CA)

First of all, these days just keep passing by me at such speed that I simply can hold on and pray.  I am so thankful for God’s love and mercy, and for coffee!

A lot of you know that we had been to see the GI doctor a couple of weeks back and he has agreed that Bekah can have a g-tube placed.  We have struggled over this decision for years but we now know it is time to have a tube placed.  This will help keep her on schedule with feedings, free my time up from having to try to get enough calories in her for each day, and we will be able to control the nutrition that is going in.  Bekah will still eat by mouth as much as she wants, but we can guarantee that the calories, the nutrition, and the fluids are all there for her.  We went for the upper GI scan and everything was cleared for her with the placement.  We just had to wait for the office to schedule.  Well, we waited and waited.  I called yesterday and the doctor had never told the girls to schedule the placement.  They said that they could do it on Friday (two days away), or on Monday/Tuesday (Chris would have to really fight to be off), or after Christmas.  Dr. Meyers really wanted to be the one on hospital rotation so he could check on Bekah.  We would be in the hospital for two or three days if everything worked out perfectly.  So since we are looking forward to going to SC for Thanksgiving and excited about the Wheelers coming to our house for Christmas, we decided to wait until after Christmas for the placement.  It’s really only about seven weeks – which with everything going on in those weeks is going to go by so fast.  They are working on getting us either the 31st of December or the 2nd of January.  I’m a little disappointed but know we made the right decision.

We also had an appointment with Bekah’s wheelchair company.  He said that she is growing really fast and will probably need a new chair in a year or so.  We’ve only had this one for one and a half years and the insurance refuses to pay before three years.  He is ordering a new base for her chair and a new chest strap.  He is very attentive and has a special needs son of his own.

We are also trying to get a mount for Bekah’s talking device.  This will mount it to the wheelchair so that she can have her device out all the time at school and when we are out.  The company basically told us to pick what we would like/want and they will try to get it for us.  We are looking for something for her chair at home, her wheelchair, and a floor mount for at school because she sits in a few different chairs throughout the day.  It is a little overwhelming without having direction from a professional.  Right now we go to private speech therapy on Monday and Friday afternoon at the end of the school day.  This is a great change for us from Wednesday and Thursday morning.  It is a lot less rushed and we don’t feel like we are missing out on so much at school.  Bekah works with “switches” on Monday playing computer games with the therapist.  We’ve also bought a subscription so that she can play these games at home.  Go to www.helpkidzlearn.com to check out some of the games.

(Bekah at private speech therapy with Miss Elisabeth – look at that concentration!  Kayla is always right there helping and learning)

Things are going well at school and Bekah couldn’t be happier.  Her classroom is filled with children who love her and treat her kindly.  There are some very active children in the classroom and Bekah loves to watch the action.  I asked the teacher about getting more help in the classroom especially because I know Bekah is content to sit in her chair watching what’s going on.  When she is engaged and working, she makes so much more progress.  The county has promised to try to find someone else to put into the classroom, so we will see when that happens.  Bekah’s teachers are very sweet and work really hard to make sure she is included in all activities.  They had a little halloween party and Bekah came home with all kinds of treats that she could eat.  They had bought special treats just for her – – some peas, the little melt-away snacks, all kinds of stuff – – so nice!  The biggest difference from last year is that the teacher/parent communication level is so much higher.  Bekah’s teachers send me pictures, email, and text.  It’s so great!  Her progress reports aren’t great, but I think that is due to not having enough hands in the classroom for all the needs they are supporting.  Her teachers names are Mrs. Hurst and Mrs. Hutson.  Please pray for these precious ladies.


Therapy is going better at school.  Bekah sees different therapists each day and has scheduled times for them to work with her.  At first, Bekah screamed bloody murder every time the physical therapist walked into the room.  After many weeks of working with her, Bekah has decided that Mrs. Julia is ok.  I’m thankful we got that all worked out. Bekah also sees the vision specialist (Mr. Nick), the speech & language pathologist (Mrs. West) (once in a group setting and once one-on-one), and the occupational therapist (Mrs. Misti).  The teacher for the deaf and hard of hearing will also be coming into the classroom to give the teachers some strategies since so many of their children are non-verbal.  It’s no wonder she’s so worn out and her hair is all a wreck at the end of the day!

Bekah has determined that she is a big girl now and big girls don’t take naps.  She is really adjusting to the longer day and makes it to about 8 o’clock now for bed time.  We’ve taken bananas out of her diet now and she is sleeping so much better.  She still wakes a few times in the night, but no where near the hour long periods we used to have.  Many people I’ve talked to have said that bananas upset their stomachs too.  I am so glad we figured that one out.  

We have been going to a therapy company that is sort of like a library for adapted toys.  Bekah (and Kayla) can try out toys, computer programs, switches, etc. that work to make it easier for Bekah to activate and to be engaged.  Mrs. Lisa is amazing and always has new and excited things for us at our monthly visits.  At the end of each session, Mrs. Lisa lets us have a bubble party.  We sing and dance in the bubbles and we all leave happy and sticky!  =)

(Bubble Party at Lekotek)

Bekah has really changed over the last few months.  She really is growing physically and you can just tell that she isn’t a baby anymore.  I was just telling Chris that I don’t get the “How old is your baby?” question anymore.  =)  We had her hair cut with some cute little bangs and I think she just looks older and so adorable now.  Chris and I have also done a lot of growing too.  A lot of these things (like the feeding tube) have been a battle of pride and surrender for us.  God has been so patient and generous with us. 

Kayla has been doing a fantastic job in second grade.  We’re enjoying our second year in our co-op and Kayla is making huge strides.  We do school at home (or wherever we see fit for the day) on Tuesday, Thursday, and Friday.  I love being involved in her learning process and feel honored to be able to help her day to day.  Kayla has a new love – – BOOKS!  If her voice ever falls silent, she is probably in her bed reading.  She has such an appetite for books that we’re making regular trips to the library to bring home a large tub full.  She has finished several large projects for school this year, which are right up her alley because she loves drawing and crafting.  Her teachers are loving and she has made lots of friends, many that go to West Ridge Church with us.  This summer at VBS, Kayla decided to begin her journey with Christ.  She wants to be baptized so that she can make a public profession of faith to her friends and family.  She has been so inquisitive and eager to learn about a personal relationship with Him.  It really is contagious to watch!

We are still a very active part of the special needs group at our church.  They’ve really been a life-line for us.  I can’t imaging this journey without them.  We meet twice a month with some amazing child care so that the adults can support each other and talk though what we are each facing on our journey.  We’ve seen this group grow this fall too.  Amazing the work that God is doing in our community.  Once a quarter we have a “breakaway” time of respite where we can drop off both girls at the church for a fun time (bouncies, petting zoos, firetrucks, etc – they go ALL OUT) and we can get away for four hours with no worries.  Last time they had 100 children (special needs and their siblings) and 125 volunteer workers.  It’s an amazing ministry.

Thank you so much for loving our family and continuing to lift us up in prayer.  We know that only by God’s strength is the journey of life possible.  We are seeking to honor Him in our family and in our day-to-day activities.

Posted in Homeschool, Kayla News, Parenting Adventures, Rebekah's Updates | 2 Comments

a waking up change

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I have never been a morning person.  I love the way I feel in bed.  I love to burrow deeper into the covers.  I love to hold really still so that I can stay in the warm spot in the bed.  I love the way you can hear your own heart beating if the room is quiet enough.  I love drifting in and out of sleep, knowing that you can linger here as long as you want because there is nothing waiting for you to get up.

All these feelings are now memories.  Now, I get up before the sun.  I have three alarms set so that I am able to begrudgingly peel back the covers.  Do I have some high-power job to rush off to? Must I head out to feed the livestock and water the fields so that we are sure to have a healthy harvest?  Does my commute take me hours from home?  No.

I simply get up for me.  For Valerie.  For the sake of the completed sentence.  For coffee with the love of my life before the girls wake.  For drinking a whole cup of coffee before it gets cooled down.  For getting my thoughts down “on paper”.  For a shower where no one comes in to ask if I could make her breakfast “right now”.  For a quick glance at the mountain that has to get moved each day one appointment, to-do list, or homeschool assignment at a time.  For the stillness of the house.  For the silence in which prayer gets accomplished and listening for answers is attempted.

All of these things make sanity possible.  All of these focus me and gather up my me-ness so that I can function, teach, drive, advocate, shop, cook, encourage, intercede, meal plan, correspond, tidy the home, and move that mountain by marking off one task at a time.

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Photos of Gratefulness Challenge

The girls over at the Middle Places have issued a challenge of gratefulness.  Are you on twitter or instagram?  Join us for this fun way to remain grateful.

You can see me on twitter as @kandrmama and on instagram as threeoclockshop.

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One More Day

Today I am so thankful for my hubby.  He has been gone since Monday morning and my back is feeling it tonight!

This week has gone fast because of how busy we’ve been.

Just tonight since about 9 o’clock, this has been my to-do list.  Both girls are fed and sleeping.  I’ve got the dishwasher running.  The lunches are packed for tomorrow and the living room is picked up.  All the laundry is clean, separated, and put away (except for Kayla’s – that’s her chore).  Bekah’s talking device is charging, her school folder has been checked, and her outfit is laid out.  I’ve got tomorrow’s medicine sorted and Bekah’s AFO’s ready.  My MOPS roster has been updated, emailed, and printed.  My journey group roster has been typed and emailed.  My 31 Gifts invitations are printed and ready to go to MOPS tomorrow.

Tomorrow is going to be a crazy day too!  We have to drop Bekah off for school and then head to MOPS.  Then we will have lunch and pick up Bekah.  Speech is at 2:00 then we really need to get to the chiropractor.  I might have to squeeze in a trip to the eye doctor’s office and then head back home.  Chris is scheduled to be back sometime around dinner and then we are off to the science fair for Kayla.  (How does a seven year old dress for the science fair any way?!?!)

Whoosh!  Can’t wait to hug my man tomorrow evening!

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Balancing on a Tightrope

 

Tonight’s devotion time with Kayla was special to me.  Not because we were talking about some issue she has been having or because she fell repentant for every naughty thing she has ever done.  Tonight we actually had a conversation about the topic of the devotion.   It went something like this.

Our reading was Jeremiah 29:11-13 (some favorite verses to cling to):  “I know the plans I have for you” announces the LORD. “I want you to enjoy success.  I do not plan to harm you.  I will give you hope for the years to come.  Then you will call out to me.  You will come and pray to me.  I will listen to you.  When you look for me with all your heart, you will find me…”

We’ve been going through the ONE YEAR Book of Devotions for Kids by Tyndale.  While some of the topics are a little too old for Kayla and they have to be adjusted by us, this has been a good book for us.  It is the right length for her attention span and has great scripture reading that she can do herself to go along with the topics.

In tonights reading, the boy in the story had been to the circus and was admiring the tightrope walker.  His father asked him if he knew why he never fell off the rope.  The boy didn’t know and asked his father for an explanation. The man said that the tightrope walker never falls because no matter what happens around him, he keeps his eyes on the destination at the end of the rope.  The mom added that “Christians are tightrope walkers too.  A christian who doesn’t keep his eyes on God loses his balance and falls.”

Kayla’s eyes lit up.  She said “Ooooh I know!  Just like what we talked about in church when Peter was in the boat during the storm.  Jesus told him to step out of the boat and come to Him.  Peter did.  Only, when he took his eyes off of Jesus, he melted into the water.” (Not sure about the melting part.  hehehe)

I wanted to jump up and yell “YES! YES! YES!”  Instead, I gave her a big grin and continued talking with her through tears in my eyes.

We were able to have a nice short talk about how this applies to our lives personally and how we can watch for this happening around us.

I praise the Lord for Kayla’s open and surrendered heart.  I praise Him for adults who are willing to speak truth into her life consistently.  I am so thankful for each time we realize a teachable moment is upon us and grasp the moment tightly.  Thank you Lord for the blessing of this little girl in my life.

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Laundry Thoughts

Kayla and I had an interesting conversation the other day.  It went like this.

Me: Kayla, come put away your clean clothes.

K: Ugh! Why are all my clothes inside out when you give them back to me after you wash them?

Me: Because you turn them inside out when you put them in the dirty clothes.

K: …

Me: …

K: Ok.

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